Hannah: Something that I kind of want everybody to understand about disability is that you’re not your disability you’re a person. Cindy: Just last week she um, she sneezed and she broke some ribs. Hannah: Blogging has definitely given me more confidence. Hey y’all it’s Hannah and welcome back to my channel. It’s definitely made me realise that I can do a lot more things. I will see you all in the next video really, really soon. Bye my little Hannicorns . I’ll use this little stick and it actually helps me get things off the floor. It’s supposed to be a back scratcher but I just use it to pick stuff up with If I drop something which is pretty much on a daily basis, because I have extreme butter fingers. I’m Hannah, I’m 24 years old and I have Osteogenesis Imperfecta. How I would describe my disease. I literally just say like I have brittle bones disease. Meaning that my bones just break very, very easily. The biggest challenge in my disease is always trying to have to look for places that are handicapped accessible. I need help getting dressed during the day. I need help to get in and out of my wheelchair, bathing, that type of thing. Cindy: This is the way I actually pick her up and put her in her chair, and take her out of her chair. It’s called a warrior Lift. And yes, it is extremely expensive. Hannah was in a program and they
actually helped provide funding for this. This is our morning and nightly routine.
Hannah: Yes. Cindy: And let her down. And then just unhook it. It’s basically a big swing.
Hannah: Yes. Cindy: And that’s and then I usually just get her dressed for bed and I’ve got to get her dressed for the day and this is how we do. I found out Hannah had OI when she was born, it was immediately diagnosed right
after birth. I was very young. I was 21 years old when I had Hannah. Being told that your baby has a severe disease was very, very scary. She was you know, like a normal baby she just had broken bones and they didn’t exactly know what to do with her either. So they told us put her on a pillow take her home and, and love her. Hannah: Sometimes it frustrates me a little bit that I can’t be more independent but not always. I guess I don’t really let that bother me too much, because everybody needs help sometimes. I’m a lot closer to my mom than most people are, I’m a lot closer with my brother. We look out for each other a lot.
Colton: Yeah we look out for each other. Hannah: We still argue like typical brother and sister. Colton: I remember the first time I really noticed somebody was messing with Hannah, I was really young. And it was another little boy my age. I was probably about eight or nine. We were in Wal-Mart and he’s laughing at Hannah. And I was like hey man, that’s not cool. I was just kind of sitting in between him and Hannah. I mean, that’s happened a lot a couple of times. Just something that happens, I guess. That’s my sister. She was born that way for a reason and I was her brother for a reason. Hannah: Oh I won, I’m sorry, I’m sorry for knocking you out. Good game. Cindy: In the morning times when she wakes up, she takes four different medicines by mouth . She worked real hard to learn how to swallow pills. she actually has to eat when she takes the medicines. If I keep her active, she’ll stay awake. But if she sits around, she’ll, she’ll nap for about 45 minutes to an hour late in the afternoon. And other than that, you know. Hannah: My disease has slightly improved over the years; I’ve gotten a lot better at not breaking as frequently and not getting as sick. So I feel like that’s a really, really good thing and I’m very happy for that. Cindy: Just last week she, she sneezed and she broke some ribs. I was actually in the room when she sneezed and I heard it pop. And it’s it literally sounds like a piece of chalk breaking. Hannah: It feels very weird because you can feel them popping and you can hear it just have to let it heal on it’s own. There’s really nothing that they can do for it. I started getting into makeup and kind of at a very young age. I started watching a lot of YouTubers on YouTube do make up. And then one day just kind of clicked into me that maybe I should try to give it a go myself. Hey y’all it’s Hannah and welcome back to at my channel. Blogging has definitely given me more confidence, it’s definitely made me realise that I can do a lot more things and it’s really, it’s really improved my self esteem. Hi my little Hannicorns that is it for this video. Thank you all so much for watching it please don’t forget to subscribe and I’ll see you in my next video. Bye. Thank you.
Cindy: Ready? Hannah: Yes.
Cindy: You go girl. I just have my wallet. And then here I just have like some little lip glosses. They’re like samples, and I just keep my phone. That’s all. Hannah: I have no idea what’s in that. Cindy: In the back of the cart is, we keep a rain poncho because her controller can’t get wet if we end up in a rain storm. So I have to keep a poncho in there. In the last couple of years, I think I have become way more independent with her and feel more comfortable going out and doing things. Before I felt like I had to have an entourage of help. But now I don’t feel that way. I try to let her live life to the fullest. Hannah: I definitely feel like my disability has made me and my family a lot closer. I really just wanted people to see me as like a normal person just like everybody else. I don’t really think that I’m any different than anybody else. I really think that we need to get past that stereotype of people with disabilities are different because they’re really not.